IFOND Dictionary: A B C D E F G H I J K L M N O P Q R S T U V W X Y Z NUM Index
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International Foundation for Optic
Nerve Disease |
If you find this site helpful or IFOND sponsored research worthwhile, please donate to IFOND at the address above.
About IFOND |
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Brazil LHON Field Trip Reports With your support, IFOND sponsors research on the world's largest Leber Hereditary Optic Neuropathy [LHON] pedigree. In our projects section Dr Alfredo Sadun, the study co-ordinator, has summarized the studies to date since 2001 when they began with IFOND sponsorship. We have pushed the frontiers of knowledge about Leber Hereditary Optic Neuropathy. Please donate to IFOND to see this and other worthwhile IFOND work continue. |
IFOND was started by Anne and Fred Diehl when they learned, after visits to many different eye specialists, that the sudden vision loss their 25 year old son experienced was caused by Leber's Hereditary Optic Neuropathy (LHON). The diagnosis was easy once they found doctors familiar with Leber's and with the LHON diagnostic blood test, developed in 1992.
As the Diehls began to inform themselves about LHON, they encountered the excitement among researchers worldwide over progress in understanding the underlying causes of Leber's and other diseases of the optic nerve and nervous system. The Diehls realized the work of a foundation dedicated to optic nerve disease could help move this work forward and help other families afflicted. IFOND was incorporated as a non profit foundation in October, 1995.
IFOND welcomes your support. If you would like to donate time or money to help IFOND please contact us.
IFOND Board of Directors
Ivan Bodis-Wollner, MD, D.Sc. (Chair)
Professor, Neurology and Ophthalmology
Downstate Medical School State University of New York
Anne and Fred Diehl
Founders of IFOND
Bryan Cebuliak, MD (Web site editor)
General Practitioner
Brisbane, Queensland, Australia
Elaine Cebuliak, BVSc
Veterinary Surgeon and Physician
Brisbane, Queensland, Australia
Olie Westheimer
IFOND Scientific Advisors
Alfredo Sadun, MD, PhD
Professor of Neurosurgery and Ophthalmology
University of Southern California School of Medicine
Jerome Sherman, OD
Professor of Optometry
State College of Optometry,
State University of New York
Margaret Wong-Riley, PhD
Professor, Cell Biology, Neurobiology and Anatomy
Medical College of Wisconson
Stan Schein, Ph.D, MD
Associate Professor
Department of Psychology, Program in Cognitive Science,
& Program in Neuroscience of the Brain Research Institute
University of California, Los Angeles
Los Angeles, California, USA
Valerio Carelli, MD, PhD
Researcher/Assistant Professor, Laboratory of Neurogenetics, Dept. of Neurological Science
University of Bologna
Bologna, Italy
About IFOND | Projects | Understanding OND | Ischaemic OND | Toxic OND | Glaucomatous OND | Leber Hereditary Optic Neuropathy | References/Links | Image Gallery | Feedback | Using this site | HOME
If you find this site helpful or IFOND sponsored research worthwhile, please donate to IFOND at the address below.
The International Foundation for
Optic Nerve Disease
P. O. Box 777, Cornwall NY 12518, USA.
TEL/FAX (845) 534 7250
Email: ifond@aol.com
Web site:
http://www.ifond.org/
IFOND is registered service mark of
The International Foundation for Optic Nerve Disease
Copyright 1999-2008, International Foundation for
Optic Nerve Disease.
The information contained on this website should not be considered medical guidance or professional advice. IFOND is not responsible for errors or omissions in information provided on this site or actions resulting from its use. IFOND does not publish all information from all available sources on optic nerve disease. IFOND is not responsible for the validity of the studies or reviews nor is it an advocate of studies or reviews mentioned on or linked from the IFOND web site. IFOND does not endorse or recommend participation in any particular clinical trial or treatment protocol which may be mentioned on this site. Direct any questions concerning your personal health to your appropriate health care professional.