IFOND Dictionary: A B C D E F G H I J K L M N O P Q R S T U V W X Y Z NUM Index
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International Foundation for Optic
Nerve Disease |
If you find this site helpful or IFOND sponsored research worthwhile, please donate to IFOND at the address above,
or JustGive.org.
About IFOND |
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IFOND gratefully acknowledges all our generous donors. For years a large portion of our funding has been from the IFOND annual golf outing. This happy event will continue. Email us if you are attending. Recently we have also been getting a steady but modest flow of online donations from many sources. McCORMICK& COMPANY, INC. have been generous regular donors with their Matching Gifts Program. In July 2010 we were graced with a large donation from The Welcoming Club of Garden City. See our fundraising section for further details and recognition. Without your generous giving our important research would not happen. Alfredo A. Sadun, MD, PhD, wins 2012 William F. Hoyt Award The IFOND Board is very proud to have Professor Aldredo Sadun as a scientific advisor. This November our most distinguished and effective teacher, clinician and researcher was awarded by the American Academy of Ophthalomology and the North American Neuro-Ophthalmology Society their highest honour in Neuro-Ophthalmology, The William F. Hoyt Lecturer Award. 17th Annual Golf Outing success Don Diehl, Golf Outing Chair, reports that the 17th Annual Golf Outing Fundraising Event held on September,10 2012 was a resounding success with over 125 golfers participating and many other generous sponsors and donors contributing to the effort. Idebenone treatment for LHON A randomized placebo controlled study published in the journal Brain showed idebenone to be an effective treatment for LHON. Idebenone is a synthetic benzoquinone, co-enzyme Q10 like substance, potent antioxidant and inhibitor of lipid peroxidation, which also interacts with the mitochondrial electron transport chain and facilitates mitochondrial electron flux through by-passing complex I. It was shown in the study to be well tolerated and have modest effectiveness in about half of LHON patients treated. The result confirms retrospective treatment data soon to be published. People treated early in onset and for prolonged periods were likely to benefit most. LHON treatment trials IFOND scientific members are involved in new LHON treatment trials using the Vitamin E metabolite substance, Alpha-tocotrienol-quinone, coded EPI-743, a potent antioxidant. Find Dr Jerry Sherman's presentation of his optometric case findings in this promising open label study in Review of Optometry Case 38 Leber's Hereditary Optic Neuropathy [Note: be patient for the 60 second wait to download the 100 slides.] Brazil LHON Field Trip Reports With your support, IFOND sponsors research on the world's largest Leber Hereditary Optic Neuropathy [LHON] pedigree. In our projects section Dr Alfredo Sadun, the study co-ordinator, has summarized the studies to date since 2001 when they began with IFOND sponsorship. We have pushed the frontiers of knowledge about Leber Hereditary Optic Neuropathy. Please donate to IFOND to see this and other worthwhile IFOND work continue. |
IFOND's mission is to support research into the causes, prevention, and treatment of Optic Nerve Disease; and to disseminate relevant information to health care workers, patients, and families affected.
IFOND was started by Anne and Fred Diehl when they learned, after visits to many different eye specialists, that the sudden vision loss their 25 year old son experienced was caused by Leber's Hereditary Optic Neuropathy (LHON). The diagnosis was easy once they found doctors familiar with Leber's and with the LHON diagnostic blood test, developed in 1992.
As the Diehls began to inform themselves about LHON, they encountered the excitement among researchers worldwide over progress in understanding the underlying causes of Leber's and other diseases of the optic nerve and nervous system. The Diehls realized the work of a foundation dedicated to optic nerve disease could help move this work forward and help other families afflicted. IFOND was incorporated as a non profit foundation in October, 1995.
IFOND welcomes your support. If you would like to donate time or money to help IFOND please contact us. IFOND has 501(c)(3) status with the IRS, so all donations are tax deductible in the USA. Credit card donations can be given on line at JustGive.org.
IFOND Board of Directors
Ivan Bodis-Wollner, MD, D.Sc. (Chair)
Professor, Neurology and Ophthalmology
Downstate Medical School State University of New York
Anne and Fred Diehl
Founders of IFOND
Bryan Cebuliak, MD (Web site editor)
General Practitioner
Brisbane, Queensland, Australia
Elaine Cebuliak, BVSc
Veterinary Surgeon and Physician
Brisbane, Queensland, Australia
Olie Westheimer, MA
Charity promoter. Founding board member
Michael J. Moriarty, MBA, CPA
Managing Partner Capital Hospitality Group
Herndon, Virginia
John Nolan, CPA
Investment Banker
New York
IFOND Scientific Advisors
Alfredo Sadun, MD, PhD
Professor of Neurosurgery and Ophthalmology
University of Southern California School of Medicine
Jerome Sherman, OD
Professor of Optometry
State College of Optometry,
State University of New York
Margaret Wong-Riley, PhD
Professor, Cell Biology, Neurobiology and Anatomy
Medical College of Wisconson
Stan Schein, Ph.D, MD
Associate Professor
Department of Psychology, Program in Cognitive Science,
& Program in Neuroscience of the Brain Research Institute
University of California, Los Angeles
Los Angeles, California, USA
Valerio Carelli, MD, PhD
Researcher/Assistant Professor, Laboratory of Neurogenetics, Dept. of Neurological Science
University of Bologna
Bologna, Italy
About IFOND | Projects | Understanding OND | Ischaemic OND | Toxic OND | Glaucomatous OND | Leber Hereditary Optic Neuropathy | Support for the Blind | References/Links | Image Gallery | Fundraising | Feedback | Using this site | HOME
If you find this site helpful or IFOND sponsored research worthwhile, please donate to IFOND at the address below,
or JustGive.org.
The International Foundation for
Optic Nerve Disease
P. O. Box 777, Cornwall NY 12518, USA.
TEL/FAX (845) 534 7250
Email: ifond@aol.com
Web site:
http://www.ifond.org/
IFOND is registered service mark of
The International Foundation for Optic Nerve Disease
Copyright 1999-2013, International Foundation for
Optic Nerve Disease.
The information contained on this website should not be considered medical guidance or professional advice. IFOND is not responsible for errors or omissions in information provided on this site or actions resulting from its use. IFOND does not publish all information from all available sources on optic nerve disease. IFOND is not responsible for the validity of the studies or reviews nor is it an advocate of studies or reviews mentioned on or linked from the IFOND web site. IFOND does not endorse or recommend participation in any particular clinical trial or treatment protocol which may be mentioned on this site. Direct any questions concerning your personal health to your appropriate health care professional.