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IFOND research | LHON treatment prospects | Mitochondrial Genome Editing | COVID-19 and LHON | LHON talks | Pay it forward | Mitochondrial Regulation | Avoid BAK eye drop preservative, etc. | We experiment with cigarette smoke so you need not. | Viral vector trials | EPI-743 LHON trials | Idebenone LHON trials
Digests: NEI News | Mitochondrial Disease News LHON | ARVO Journals LHON | PubMed LHON | Europe PMC LHON | MRC-MBU newsIFOND was started by Anne and Fred Diehl when they learned, after visits to many different eye specialists, that the sudden vision loss their 25 year old son experienced was caused by Leber's Hereditary Optic Neuropathy (LHON). The diagnosis was easy once they found doctors familiar with Leber's and with the LHON diagnostic blood test, developed in 1992.
As the Diehls began to inform themselves about LHON, they encountered the excitement among researchers worldwide over progress in understanding the underlying causes of Leber's and other diseases of the optic nerve and nervous system. The Diehls realized the work of a foundation dedicated to optic nerve disease could help move this work forward and help other families afflicted. IFOND was incorporated as a non profit foundation in October, 1995.
IFOND welcomes your support. If you would like to donate time or money to help IFOND please contact us.
Efficient funding
IFOND is an extremely lean, all volunteer 501(c)(3) tax status registered nonprofit. We have no salaried associates. Our process minimizes costs and maximizes funding for researchers' direct, non administrative expenses. All donations are tax deductible in the United States of America. Our recent tax returns are searchable here e.g. latest IRS website listed year 2019 here. Tax Year 2022 Form 990EZ and Tax Year 2022 IRS Filing Acceptance . Also see here. Our scientific board includes many of the prominent world leading published researchers in optic neuropathies. If this big bang for your buck model appeals to you, please donate. If you are a researcher in optic neuropathy, we welcome your funding application.
Ivan Bodis-Wollner, MD, D.Sc. (Chair Emeritus)
Professor, Neurology and Ophthalmology
Downstate Medical School State University of New York, United States of America
Anne and Fred Diehl
Founders of IFOND
Bryan Cebuliak, MD (Web site editor)
General Practitioner
Brisbane, Queensland, Australia
Elaine Cebuliak, BVSc
Veterinary Surgeon and Physician
Brisbane, Queensland, Australia
Olie Westheimer, MA (retired)
Charity promoter. Founding board member
Michael J. Moriarty, MBA, CPA
Managing Partner Capital Hospitality Group
Herndon, Virginia, United States of America
John Nolan, CPA
Investment Banker
New York, United States of America
Lissa Poincenot, MBA
Founder of LHON.org and
published scientific author
Carlsbad, California, United States of America
Alfredo Sadun, MD, PhD
Professor of Neurosurgery and Ophthalmology
Doheny Eye Institute, University of California Los Angeles
Los Angeles, California, United States of America
Jerome Sherman, OD
Professor of Optometry
State College of Optometry,
State University of New York
New York, New York, United States of America
Margaret Wong-Riley, PhD
Professor Emeritus, Cell Biology, Neurobiology and Anatomy
Medical College of Wisconsin,
Milwaukee, Wisconsin, United States of America
Valerio Carelli, MD, PhD
Researcher/Assistant Professor, Laboratory of Neurogenetics, Dept. of Neurological Science
University of Bologna
Bologna, Italy
Patrick Yu-Wai-Man, BMedSci, MBBS, PhD, FRCPath, FRCOphth
Wellcome Trust Centre for Mitochondrial Research, Institute of Genetic
Medicine, Newcastle University, United Kingdom
Moorfields Eye Hospital and UCL Institute of Ophthalmology, London, United Kingdom
Department of Clinical Neurosciences, University of Cambridge, United Kingdom
Rustum Karanjia, PhD, MD
Assistant Professor, Ophthalmology, Ottawa Eye Institute and VP Research, Department of Ophthalmology
University of Ottawa, Ottawa, Ontario, Canada
Visiting Researcher, Neuro-Ophthalmology
Doheny Eye Institute, UCLA, Los Angeles, California, United States of America
Editor in chief of the journal Eye and Brain, published by Dove Medical Press/Taylor & Francis. (succeeding our long time board member Professor Margaret Wong-Riley)
Chiara La Morgia, MD, PhD
Assistant Professor in Neurology at the IRCCS Institute of Neurological Sciences of Bologna,
Neurology Clinic, Bellaria Hospital, Via Altura 3, 40139, Bologna, Italy;
Department of Biomedical and Neuromotor Sciences (DIBINEM), University of Bologna, Italy
The International Foundation for
Optic Nerve Disease
P. O. Box 777, Cornwall NY 12518, USA.
Phone/Fax: (845)5348606
Email: ifond@aol.com
Web site:
http://www.ifond.org/
IFOND is registered service mark of
The International Foundation for Optic Nerve Disease, est. October 1995.
Copyright 1999-2024, International Foundation for
Optic Nerve Disease.
The information contained on this website should not be considered medical guidance or professional advice. IFOND is not responsible for errors or omissions in information provided on this site or actions resulting from its use. IFOND does not publish all information from all available sources on optic nerve disease. IFOND is not responsible for the validity of the studies or reviews nor is it an advocate of studies or reviews mentioned on or linked from the IFOND web site. IFOND does not endorse or recommend participation in any particular clinical trial or treatment protocol which may be mentioned on this site. Direct any questions concerning your personal health to your appropriate health care professional.