|IFOND NEWS |
IFOND gratefully acknowledges all our generous donors.
For years a large portion of our funding has been from the IFOND annual golf outing.
This happy event will continue. Email us if you are attending.
Recently we have also been getting a steady but modest flow of
online donations from many sources.
McCORMICK& COMPANY, INC. have been generous regular donors with their Matching Gifts Program.
In July 2010 we were graced with a large donation from
The Welcoming Club of Garden City.
See our fundraising section for further details and recognition.
Without your generous giving our important research would not happen.
Alfredo A. Sadun, MD, PhD, wins 2012 William F. Hoyt Award
The IFOND Board is very proud to have
Professor Aldredo Sadun as a scientific advisor. This November our most distinguished and effective
teacher, clinician and researcher was awarded by the American Academy of Ophthalomology and
the North American Neuro-Ophthalmology
Society their highest honour in Neuro-Ophthalmology, The William F.
Hoyt Lecturer Award.
17th Annual Golf Outing success
Don Diehl, Golf Outing Chair, reports that the 17th Annual Golf Outing Fundraising Event held on September,10 2012
was a resounding success with over 125 golfers participating and many other generous sponsors and donors
contributing to the effort.
Idebenone treatment for LHON
A randomized placebo controlled study published in the journal Brain showed idebenone to be an effective treatment for LHON. Idebenone is a synthetic benzoquinone, co-enzyme Q10 like substance, potent antioxidant and inhibitor of lipid peroxidation, which also interacts with the mitochondrial electron transport chain and facilitates mitochondrial electron flux through by-passing complex I. It was shown in the study to be well tolerated and have modest effectiveness in about half of LHON patients treated. The result confirms retrospective treatment data soon to be published. People treated early in onset and for prolonged periods were likely to benefit most.
LHON treatment trials
IFOND scientific members are involved in new LHON treatment trials using the Vitamin E metabolite substance, Alpha-tocotrienol-quinone, coded EPI-743, a potent antioxidant.
Find Dr Jerry Sherman's presentation of his optometric case findings in this promising open label study in
Review of Optometry Case 38 Leber's Hereditary Optic Neuropathy [Note: be patient for the 60 second wait to download the 100 slides.]
Brazil LHON Field Trip Reports
With your support, IFOND sponsors research on the world's largest Leber Hereditary Optic Neuropathy [LHON] pedigree. In our projects section Dr Alfredo Sadun, the study co-ordinator, has summarized the studies to date since 2001 when they began with IFOND sponsorship. We have pushed the frontiers of knowledge about Leber Hereditary Optic Neuropathy. Please donate to IFOND to see this and other worthwhile IFOND work continue.
Annual Golf Outing
IFOND successfully completed its 17th Annual Golf Outing fundraiser at the Spook Rock Golf Course,
Suffern, NY. over 125 golfers participated and and many other generous sponsors and donors contributed to the effort.
IFOND gratefully acknowledges the contributions of all our donors. If you are interested in hosting a fundraising event on IFOND's behalf contact IFOND at firstname.lastname@example.org. The great efforts of our recent donors need special mention:
McCORMICK& COMPANY, INC. have been generous regular donors:
In 2013 we received $ 8,006. from the McCormick & Co. Matching Gifts Program.
In 2012 we received $ 5,000 with this letter:
McCORMICK& COMPANY, INC.
CIRCLE, SPARKS, MD 21152-6000
TEL (410) 771-7301
FAX (410) 771-7462
April 24, 2012
Mr. Fred Diehl
International Foundation for Optic Nerve Disease
P.O. Box 777
Cornwall, NY 12518
Dear Mr. Diehl:
It is with great pleasure that we present this check in the amount of $5,000 to the International
Foundation for Optic Nerve Disease (IFOND.) Donald Diehl was recently presented with an
award as a Finalist in the McCormick Community Service Award Program. The Community
Service Award is presented to employees who best exemplify McCormick's commitment to
improving the communities in which we live and work through their volunteer efforts. We are
very pleased to recognize his time and commitment to your organization and this important
It is our hope that the McCormick Community Service Award Program, and the efforts of people
like Donald, will continue to inspire other McCormick employees to give back and volunteer
their time to helping others.
Director, Global HR Operations & Employee Engagement
cc: Donald Diehl
In 2011 we received $ 3,300 from McCormick & Co., Hunt Valley, Maryland - Matching gifts program.
The Welcoming Club of Garden City
For their very generous donation in July 2010 the amount of $15,000.
The Knights of Pythias, Long Island Chapter.
For their kind donation of $1000.
If you find this site helpful or IFOND sponsored research worthwhile, please donate to IFOND at the address below,
The International Foundation for
Optic Nerve Disease
P. O. Box 777, Cornwall NY 12518, USA.
TEL/FAX (845) 534 7250
IFOND is registered service mark of
The International Foundation for Optic Nerve Disease
Copyright 1999-2013, International Foundation for
Optic Nerve Disease.
The information contained on this website should not be considered medical guidance or professional advice. IFOND is not responsible for errors or omissions in information provided on this site or actions resulting from its use. IFOND does not publish all information from all available sources on optic nerve disease. IFOND is not responsible for the validity of the studies or reviews nor is it an advocate of studies or reviews mentioned on or linked from the IFOND web site. IFOND does not endorse or recommend participation in any particular clinical trial or treatment protocol which may be mentioned on this site. Direct any questions concerning your personal health to your appropriate health care professional.