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Find a neuro-ophthalmologist. North American Neuro-Ophthalmology Society [NANOS] world directory
See Schools, IFOND directory of US university departments of ophthalmology, and IFOND directory of US optometry schools.
Building Critical Milestone Skills for a Visually Impaired Infant/Toddler
Parenting with Disabilities: A Guide to Home Modifications
How Our Vision Changes as We Age
How to Set Up a Productive Home Office if You Are Blind or Have Low Vision
College Guide for Students with Visual Impairments
The Child Mind Institute is an independent, national nonprofit dedicated to transforming the lives of children and families struggling with mental health and learning disorders.
Home, Safe Home: Getting Started with Accessible Home Security
The blind readers page from the Chinasona Foundation LA California
American disability assistance resources compiled by Ability Village
American disability assistance resources found on DuckDuckGo search
LHON.org compiled practical advice in the American context. Nice.
The AbilityOne Commission is a US federal agency primarily funding employment agencies for the blind in the USA. It is a result of the Wagner–O'Day_Act of 1938, a product of Franklin Delano Roosevelt's New Deal policy. They use three central nonprofit organizations to administer the programs: National Industries for the Blind [NIB], SourceAmerica and American Foundation for the Blind.
Global vision impaired resources compiled with UK focus by Laser Eye Surgery Hub UK. See also their global blindness statistics page.
Lions clubs around the world give support for visual and hearing impaired people. Contact your local club for information.
We salute the affected, their families and their supporters who are taking control and
getting on with their lives.
There are no people better placed to deal with a problem than
those actually dealing with the problem.
Use a search engine
to find web sites, blogs and social networks of real people dealing with real problems and building community.
The waves they make spread around the world.
Some great examples include:
Ability Village was built by villagers in Manipur, Northern India. Their web site.
Ability Village [USA]. Woman helps her disabled brother and offers help to others:
"This site is dedicated to making the world a more inclusive and accessible place for those with physical and/or cognitive disabilities.
Please take a look at our Disability Assistance Resources page and our Blog for information and inspiration, and be sure to use our Contact form if you’d like to say hello."
Wondermoms.org is a web site which offers information and feed back developed by mothers dealing with their special needs children.
www.girlgoneblind.com is a personal blog from someone with LHON
visionfora.blogspot.com blog.
The Hadley School for the Blind information pages
The American Foundation for the Blind emotional impact support.
Web site of young man with LHON
www.facebook.com/groups/umdfgroup/
Anne and Fred Diehl started a small non profit foundation in October 1995 resulting in significant advances in understanding Optic Nerve Disease.
If you know of other groups we should mention, please contact us.
Psychology of the Blind. C. F. Fraser. The American Journal of Psychology. Vol. 28, No. 2 (Apr., 1917), pp. 229-237
Visual Impairment: Understanding the Psychosocial Impact. Medscape interview. An Expert Interview With Khadija S. Shahid, OD, FAAO
Coping with sudden blindness. Hoehn-Saric R, Frank E, Hirst LW, Seltser CG. J Nerv Ment Dis. 1981 Oct;169(10):662-5.
Psychology Wikia. Blindness
American Foundation for the Blind
National Federation of The Blind and their subdivision National Organization of Parents of Blind Children and their YouTube introduction
New York State Commission for the Blind (NYSCB) | OCFS
Canadian National Institute for the Blind
Royal National Institute for the Blind
Royal Society for Blind Children
Wikipedia entry Clinical Trials
Centrewatch list of government and industry clinical trials
VisionAWARE Self-Help for Vision Loss
MedlinePlus Optic Nerve disorders definitions and links. Patient help.
Margrain. Minimizing the Impact of Visual Impairment. eBMJ ; 1999 318 (7197) 1504
International Foundation for Optic Nerve Disease
We are an all volunteer registered non profit organization established in October 1995.
We have very low operating expenses.
We allocate research funds with scientific board oversight in a direct fashion, minimizing administrative fees.
IFOND funded research has resulted in significant breakthroughs in the understanding of the clinical course of the mitochondrial genetic eye disease, LHON.
The research found risk factors for its expression and has pointed to prevention and potential treatment.
A sampling of some other eye research funding bodies:
National Eye Institute The US government eye research funding institute. See the Leber Hereditary Optic Neuropathy search
National Alliance for Eye and Vision Research American eye professional lobby / advocacy group.
United Mitochondrial Disease Foundation US charity which supports research on inherited mitochondrial diseases.
National Organization for Rare Disorders [NORD] Their LHON page with links to other foundations.
Fighting Blindness Foundation [USA] Sponsors retinal disease research.
Mito Action US charity supporting those dealing with mitochondrial diseases.
Medical Research Council UK government medical research funding. See Eye disease search.
The Eye Bank of New York The Eye-Bank for Sight Restoration is the world’s first eye bank. Established in New York City in 1944, it is a private, not-for-profit organization devoted to restoring sight through eye donations and cornea transplants, as well as providing ocular tissue for research into treatment and cures for other eye diseases.
LHON society UK LHON charity
University of Toronto, Mito2i. Canadian granting and educational body for mitochondrial disease. "MITO2i aims to deliver supporting technologies, integrative platforms, and interdisciplinary knowledge that will lead to a paradigm shift in the way clinicians approach the diagnosis and treatment of disease and consider the potential role of mitochondrial dysfunction in multiple and prevalent medical conditions."
Canadian Institutes of Health Research The Canadian Federal Government health research funding body. CIHR Neuroscience research arm.
Canada Research Chairs Canadian government funding for university research
Innovation Canada Canadian government funded foundation for scientific research infrastructure support
LHON Canada Canadian LHON charity
National Health and Medical Research Council Australian Government medical funding body.
Centre For Eye Research Australia Professional Australian eye research group
Mito Foundation Australian funding charity for mitochondrial diseases
Retina Australia Australian inherited eye disease research charity
Fighting Blindness Irish patient led charity
Sightline directory RNIB search for UK eye services and charities
Royal College of Ophthalmologists charities list UK eye services and charities
Efficient funding
IFOND is an extremely lean, all volunteer 501(c)(3) tax status registered nonprofit. We have no salaried associates. Our process minimizes costs and maximizes funding for researchers' direct, non administrative expenses. All donations are tax deductible in the United States of America. Our recent tax returns are searchable here e.g. latest IRS website listed year 2019 here. Tax Year 2022 Form 990EZ and Tax Year 2022 IRS Filing Acceptance . Also see here. Our scientific board includes many of the prominent world leading published researchers in optic neuropathies. If this big bang for your buck model appeals to you, please donate. If you are a researcher in optic neuropathy, we welcome your funding application.
The International Foundation for
Optic Nerve Disease
P. O. Box 777, Cornwall NY 12518, USA.
Phone/Fax: (845)5348606
Email: ifond@aol.com
Web site:
http://www.ifond.org/
IFOND is registered service mark of
The International Foundation for Optic Nerve Disease, est. October 1995.
Copyright 1999-2024, International Foundation for
Optic Nerve Disease.
The information contained on this website should not be considered medical guidance or professional advice. IFOND is not responsible for errors or omissions in information provided on this site or actions resulting from its use. IFOND does not publish all information from all available sources on optic nerve disease. IFOND is not responsible for the validity of the studies or reviews nor is it an advocate of studies or reviews mentioned on or linked from the IFOND web site. IFOND does not endorse or recommend participation in any particular clinical trial or treatment protocol which may be mentioned on this site. Direct any questions concerning your personal health to your appropriate health care professional.